PlumX Metrics
Embed PlumX Metrics

Health-related quality of life in patients with neurofibromatosis type 1: A survey of 129 Italian patients

Dermatology, ISSN: 1018-8665, Vol: 218, Issue: 3, Page: 215-220
2009
  • 75
    Citations
  • 0
    Usage
  • 44
    Captures
  • 0
    Mentions
  • 0
    Social Media
Metric Options:   Counts1 Year3 Year

Metrics Details

Article Description

Background/Aims: Neurofibromatosis type 1 (NF1), a genetic condition most commonly characterized by the presence of dermal neurofibromas and café au lait macules, has a significant impact upon quality of life (QoL). The study aimed to assess the impact of NF1 on QoL. Methods: A total of 129 patients with NF1 completed the study questionnaires in an Italian academic dermatological centre and a neurofibromatosis clinic at the University of Rome. Results: All domains of general-health-related QoL were affected.Patients with serious cosmetic problemsreported a greater impact on the emotional domain. Conclusion: In our study, the impact of the cosmetic features on QoL had the greatest importance. This survey demonstrates the usefulness of QoL measurements in supplementing clinical assessments. Copyright © 2008 S. Karger AG.

Bibliographic Details

Provide Feedback

Have ideas for a new metric? Would you like to see something else here?Let us know