Participation of people with haemophilia in clinical trials of new treatments: an investigation of patients' motivations and existing barriers.

Citation data:

Blood transfusion = Trasfusione del sangue, ISSN: 1723-2007, Vol: 13, Issue: 2, Page: 302-9

Publication Year:
2015
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Citations 5
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PMID:
25369591
DOI:
10.2450/2014.0152-14
PMCID:
PMC4385080
Author(s):
Henrard, Séverine; Speybroeck, Niko; Hermans, Cedric
Tags:
Medicine
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article description
Over the last 50 years, clinical research investigating new treatments has been transforming the care of patients with haemophilia but we still have a long way to go and most clinical investigators are facing difficulties in recruiting appropriate candidates. A survey was conducted to evaluate what motivates people with haemophilia to participate in clinical research and to identify factors that might influence their willingness to participate.