The Lived Experience: Pulmonary Arterial Hypertension and Intravenous Prostaglandin Therapy

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Boone, Phyllis D.
thesis / dissertation description
A descriptive phenomenological study was proposed to obtain a subjective description of the experience of living with intravenous prostaglandin treatment for pulmonary arterial hypertension. It was intended to determine what kinds of elements are common to the experience with study participants, to develop an aggregate structure of the experience from the individual descriptions of it, and add to what is now known about this phenomenon. It was anticipated that the stories told by the participants could help to determine how nurses can assist future patients to live optimally within the confines of a palliative treatment for this incurable illness.Unfortunately, no participants responded to recruitment efforts by the researcher. However, the current state of nursing science about the experience of having pulmonary arterial hypertension was synthesized, and the utility of phenomenological exploration for nursing practice was discussed. Finally, the barriers to recruitment for researchers following the Health Insurance Portability and Accountability Act Privacy Rule were examined and approaches to overcome these barriers were determined.