Supporting People with Intellectual and Developmental Disabilities in Their Adult Aspiration for Sexual Relationships and Parenthood

Introduction: Despite the emphasis on the rights of adults with intellectual and developmental disabilities (IDD) to live a full and meaningful life, many do not get the opportunity to experience sexual relationships and parenthood. Parents and service providers are key sources of support for adults with IDD. The aim of the current study was to examine their attitudes and role perceptions in order to suggest a framework through which to provide optimal support for sexual relationships and parenthood. Method: The study employed qualitative analysis of interviews with 30 parents of adults with IDD and 40 service providers. Data was collected during 2018 and 2019. Results: Findings demonstrated that parents and service providers provided partial support in regard to the sexuality of adults with IDD, and expressed reservations and concerns. Service providers focused on the goal of teaching skills related to sexuality and protection against harm. Parents wanted to transfer the responsibility for this issue to service providers. Concerning parenting, service providers and parents held negative attitudes. Conclusions: The findings indicated a complex picture of conflicting and disorganized attitudes, by parents and service providers. Along with the recognition of rights, there are also concerns, reservations, and even objections. Social Policy Implications: The current study proposes that adults with IDD should be provided with holistic support, in which sexuality and parenthood are included as part of the components that are pertinent to leading a meaningful life in adulthood.