Assessing the utility of an online registry for patients monitoring their own warfarin therapy
Journal of Clinical Pathology, ISSN: 1472-4146, Vol: 69, Issue: 4, Page: 331-336
2016
- 3Citations
- 24Captures
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Example: if you select the 1-year option for an article published in 2019 and a metric category shows 90%, that means that the article or review is performing better than 90% of the other articles/reviews published in that journal in 2019. If you select the 3-year option for the same article published in 2019 and the metric category shows 90%, that means that the article or review is performing better than 90% of the other articles/reviews published in that journal in 2019, 2018 and 2017.
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Metrics Details
- Citations3
- Citation Indexes3
- CrossRef3
- Captures24
- Readers24
- 24
Article Description
Aims: To evaluate the utility of an online self-report registry for patient self-monitoring and self-management (PSM) of warfarin therapy. Methods: A prospective observational study of UK-based patients undertaking PSM and recording their international normalised ratio (INR) data via an online registry. Consenting participants recorded INR test dates, results and warfarin dosages using the online registry for a period of 12 months. Participants reported demographic data, disease characteristics and treatmentrelated adverse events and provided feedback via a survey. Data accuracy was assessed through comparison of INR results recorded online with results stored on 19 INR testing devices. Percentage time spent within therapeutic time in range (TTR) was also examined. Results: Eighty-seven per cent (39/45) completed the study period. Age ranged from 26 to 83 years, 44% had undertaken PSM for >5 years. Sixty-six per cent (25/38) reported that the registry was easy to navigate and use. Forty-two participants contributed a total of 1669 INR results. Agreement between self-reported INR results and source INR data was high (99%). Mean TTR was 76% (SD 18.58) with 83% having >60% TTR. Conclusions: Findings suggest that an online PSM registry is feasible, accurate and acceptable to patients. These findings require confirmation in a larger cohort of PSM patients. An online self-report registry could provide a valuable resource for gathering real world evidence of clinical effectiveness and safety of these developing models of care.
Bibliographic Details
http://www.scopus.com/inward/record.url?partnerID=HzOxMe3b&scp=84961784538&origin=inward; http://dx.doi.org/10.1136/jclinpath-2015-203168; http://www.ncbi.nlm.nih.gov/pubmed/26519487; https://jcp.bmj.com/lookup/doi/10.1136/jclinpath-2015-203168; https://dx.doi.org/10.1136/jclinpath-2015-203168; https://jcp.bmj.com/content/69/4/331
BMJ
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